14-Year-old girl with degenerative disease opts for euthanasia
Jerika Bolen was diagnosed at 8 months of age with Spinal Muscular Atrophy AME), a degenerative disease that affects the control of nerve movement. After 30 surgeries, the 14-year-old American decided that her efforts, more dedicated to her own family than herself, did not match the results.
The girl spends 12 hours a day sitting in a wheelchair and attached to a fan that ensures your breath. Three years ago, Jerika talks to her mother, trying to make her understand her decision, and today the family has been able to support her choice.
Currently the girl only has the strength to move her hands, which control her chair. wheels and the computer. The lack of mobility was one of the reasons that made her decide.
The month of August 2016, Jerika's last one, already has its schedule ready: the girl will spend some time with her father, with whom she does not have much contact, enjoy the summer and spend the rest of the days with her mother. To conclude, family and friends will organize a ball, with lots of music and special guests.
The use of euthanasia generates a great world debate. In several European countries and Uruguay, the so-called "good death" or "godly death" is legalized. In Brazil, the practice is illegal and considered unethical by the medical code.
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