No movements or speech, man writes book about his illness
Extremely complex, Amyotrophic Lateral Sclerosis (ALS) completely transforms the lives of those who live with the disease. And it was thinking about this that the Bahian teacher Milena Andrade decided to encourage her father to write about his battle against ELA. Antônio Ailton de Andrade, aged 70, has suffered from the degenerative disease since July 2013.
"Until now, 68 years of health has been very good until we are surprised by the appearance of this rare disease. It has arisen in me and I have to accept this reality, to seek the best possible way of coexistence, "he recounts in an excerpt from the book, entitled" I & E. "
Book / Photo: Alan Tiago Alves / G1
With your book, of little more than 80 pages, Antonio seeks to share his experience with others with the disease and, in some way, to face everything positively. He had written a book before, as soon as he discovered the disease and still had the movement of his hands, but the work was only distributed between family and friends.
When he lost all movement and speech, his daughter researched other ways so the father could communicate, discovering then the technology he currently uses. Antonio uses a device that encodes messages from his gaze on the keys of a computer. And it was with this device that he wrote his last book in just four months.
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