Palmeiras player creates auction to help little girl with rare disease
At just three years, Rafaela Moreia has a rare neuromuscular disease, known as Spinal Muscular Atrophy (AME) type 1, and can only breathe with the help of appliances. To help the girl, the captain of Palmeiras, Dudu Rodrigues, created a campaign to raise money for the treatment of Rafaela.
The player learned about the little girl's story through a childhood friend, the father's nephew. little girl, Maurício Prudêncio da Silva. By coincidence, or destiny for others, Dudu and Rafa were born in the same city: Goiânia. It was in these minor similarities that the captain became interested in history.
So Dudu decided to use his popularity for help. On Wednesday, May 24, the player gave up the shirt used in the victory over Atletico Tucumán-ARG for an auction, open for bidding until June 6 in their social networks.
"Personal, this is the shirt that I am going to auction to help little Rafaela, she is only 3 years old, suffers from a serious illness (AME) and has to pay a very expensive treatment, it is very simple to take part in. Send the amount of the bid you would like to give per message private on my Instagram or Facebook and wait, take home this special gift and help save the life of this little princess, "he commented in the post. Werdnig-Hoffmann disease, is the most severe form of childhood atrophy. It is characterized by muscle weakness, progressive degeneration of the movements, due to the involvement of the cells that connect the spinal cord to the rest of the body.
Considered an extremely rare disease, it affects one child every 200,000 births. The manifestation of the problem can occur from the intrauterine phase up to six months of age, in the case of Rafaela the symptoms only began to appear months after birth.
The diagnosis of spinal muscular atrophy is made through genetic tests in patients with unexplained muscle loss and flaccid weakness, particularly in infants and children. The disease has no definitive cure, but treatments like physical therapy can benefit patients by preventing complications such as scoliosis and providing a better quality of life and autonomy for children.
Treatment and donations
By 2016, a new medication which could help patients with this disease was approved by the Food and Drug Administration - an FDA food and drug regulator. According to tests done on children using the drug, Spinraza, during the first months of life, 40% to 60% of improvements in the condition of the patients were observed.
The problem is that treatment with this medication, which would last a year, has an estimated value of R $ 3 million. Therefore, the campaign created by the player is extremely important for the family. Also, they are getting help from other people. If you are interested in contributing to the treatment Rafaela can make donations in the account below:
Rafaela Vitória Moreira da Silva
Agency: 7938 C
Savings Account: 11455-5 / 500
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